About the DADA2 Foundation

 

The DADA2 Foundation aims to find innovative ways for patients, families, doctors, and researchers to work together to accelerate research into the rare disease Deficiency of Adenosine Deaminase 2, to raise awareness about the condition, and to improve the lives of DADA2 patients around the world. Our first big project was an international conference which brought together physicians, scientists, and patients and their families from around the world to discuss progress in the understanding and treatment of the disease and to plan a path forward for research. 

If you or your child is a newly diagnosed patient, or if you are looking for more information about DADA2, please send us an email.

 

Chip Chambers, M.D., Founder and President

Dr. Chambers is the former Chief of Endocrine Surgery at Vanderbilt University Medical Center in Nashville, Tennessee. He continues to hold his clinical faculty appointment at Vanderbilt, and he operates and teaches residents at the Veterans Affairs Medical Center. Dr. Chambers' two children were diagnosed with DADA2 in March 2014, just one month after the first articles describing the disease were published in the New England Journal of Medicine. He has spent the last two years making connections among clinicians treating patients with DADA2 all over the world, as well as patients, their families, and researchers studying the enzyme. 

 

Katherine Bell, Vice President and Secretary

Katherine Bell is the editor in chief of Barron's magazine, and the former editor of Harvard Business Review's website, HBR.org. One of her two daughters was diagnosed with DADA2 in September 2015, when she was two years old. 

 

Heather Peterson, Treasurer

Heather Peterson is Business Finance Officer for Senior Segment Strategic Priorites at Cigna-HealthSpring.  She has 22 years of experience in financial management and accounting, including 15 years at Ernst & Young. She is a certified public accountant in Tennessee.