Be counted, and help us fight DADA2

We want to learn as much as we can about our patient community, so that we can more effectively advocate for new research and help families facing DADA2 find the support they need.

We're asking for a lot of information here, but we understand that you may not want to share all of these details about yourself or your child. Please answer as many questions as you feel comfortable answering — any information will be helpful.

We will never share any identifiable information with anyone without your explicit permission. But please give us an email address so that we can contact you. We'll be in touch soon with more thoughts on how we can work together to advocate for our families.

Thank you for joining us!

Patient name
Patient name
Phone number
Phone number
We're creating a list of hospitals and clinicians with experience treating DADA2, so please include as much detail here as you feel comfortable sharing. Thanks!
Major symptoms
Please include the primary medication currently being used to treat DADA2, if you feel comfortable doing so.
Are you interested in getting in touch with other DADA2 families?